7-year-old Zac Troop is sometimes known as the "Butterfly Boy" because his skin can rip as easily as a butterfly's wings. Troop is suffering from a rare skin disease called Epidermolysis Bullosa.

A Charlestown mother is raising money for her young son who has a rare disease. Five-and-a-half years ago, Heather Curtis' son, Brody, was born with recessive dystrophic epidermolysis bullosa. One out ...